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Ethical, Legal and Social Issues (ELSI) Group Resources
Ethical, Legal and Social Issues (ELSI) Consultancy: University of Miami Ethics Programs
The ELSI team is led by Kenneth W. Goodman, PhD, and includes Reid Cushman, PhD; Michael Froomkin, JD; Anita Cava, JD; and Patricia Abril, JD.
Website: http://www.miami.edu/ethics/
Documents
Michael Froomkin, professor, University of Miami School of Law and member of Project HealthDesign’s ELSI Group, has written a new paper entitled “The New Health Information Architecture: Coping with the Privacy Implications of the Personal Health Records Revolution.” This thorough discussion of the complexity of and potential options for addressing privacy issues in next generation PHRs is both thoughtful and thought provoking. Froomkin begins with the evolution of the architecture of heath records and ends with a discussion of policy issues. Click here to read the paper.
PHRs and Privacy Regulation
ELSI Guide to Licensing Project HealthDesign Work Product
Forced Sharing of Patient-Controlled Health Records
Primer: Authentication of Identity
Primer: Data Protection and PHRs
Primer: HIPAA and PHRs
Links
AHRQ Privacy and Security Project
AHRQ Privacy Collaboration Toolkit
AHRQ: Outcomes from the Privacy and Security Solutions for Interoperable Health Information Exchange Project
American Medical Informatics Association ELSI Working Group
Anita Allen, Face to Face With 'It': And Other Neglected Contexts of Health Privacy
GAO Report: Health Information Technology: Early Efforts Initiated but Comprehensive Privacy Approach Needed for National Strategy (GAO-07-238)
GAO Report: Hospital Quality Data: HHS Should Specify Steps and Time Frame for Using Information Technology to Collect and Submit Data (GAO-07-320)
Google Health - first screenshots
HealthVault -- Conversation with chief architect Sean Nolan
National Committee On Vital And Health Statistics Proposal for HIPPA Amendment to Cover 'Secondary Users' of Data
Open Source Software: A Primer for Health Care Leaders
TauMed, a health oriented social network, announces launch of a mobile service
The Information Society Project
University of Miami Privacy and Data Protection site
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