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HomeResources > 2006-2008 ELSI Group Resources
 

2006-2008 ELSI Group Resources

 

Ethical, Legal and Social Issues (ELSI) Group Resources

Understanding the ethical, legal and social implications of health information technology and data sharing associated with the next generation of personal health records and their applications, is a key objective guiding the efforts of Project HealthDesign.

ELSI Consultancy: University of Miami Ethics Programs
The ELSI team was led by Kenneth W. Goodman, Ph.D., and included Reid Cushman, Ph.D.; Michael Froomkin, J.D.; Anita Cava, J.D.; and Patricia Abril, J.D.


Documents

The New Health Information Architecture: Coping with the Privacy Implications of the Personal Health Records Revolution

PHRs and Privacy Regulation

ELSI Guide to Licensing Project HealthDesign Work Product

Forced Sharing of Patient-Controlled Health Records

Primer: Authentication of Identity

Primer: Data Protection and PHRs

Primer: HIPAA and PHRs

 

Links

Suggested links and readings can be found in Project HealthDesign's Delicious bookmarks.

 

 









 

 
Project HealthDesign is a national program of the Robert Wood Johnson Foundation's Pioneer Portfolio