NOTE: As of June 14, 2013, the Project HealthDesign website is now an archive and will not be updated regularly. Please feel free to use the site to learn about our work exploring the power and potential of personal health records. Direct any inquiries to info@projecthealthdesign.org.
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HomeArtifacts > Ethical, Legal and Social Issues Group Artifacts
 

Ethical, Legal and Social Issues Group Artifacts

We invite you to view and use the products, tools and information developed by our 2006-08 Ethical, Legal and Social Issues (ELSI) group to further expand the vision and use of personal health records (PHRs).

The University of Miami Ethics Program served as the ELSI advisory group from 2006-08, and included Kenneth Goodman, Ph.D., Reid Cushman, Ph.D., Michael Froomkin, J.D., Anita Cava, J.D., and Patricia Abril, J.D.

All files are covered by open source Lesser General Public License (LGPL) Version 3 or Creative Common Attribution 3.0 license.  A small number of files carry other copyrights or licenses, and you are responsible for meeting the terms of use of these documents.

To download or access a file, select the link in the File column.

  • If the file carries an LGPL license, you will be asked to accept the terms and conditions of the licensing agreement and to complete a brief download form. Once you have accepted the agreement, you will be returned to the table and can download the files. You will not have to accept them again to download additional LGPL licensed files.
  • If the file carries a Creative Commons license, you can download it directly under the following terms: Creative Commons Attribution 3.0 Unported License.
  • For general terms of use associated with these documents, see Terms of Use.

Group Description File
Ethical, Legal and Social Issues (ELSI) Group
ELSI
Guide to using open source licensing, it includes software licenses and Creative Commons licenses.
(330 KB PDF file. License: CC-BY-3.0)
ELSI OpenSource Guide.pdf
ELSI
Document regarding the forced sharing of Patient Controlled Health Records.
(92 KB PDF file. License: CC-BY-3.0)
Forced sharing.pdf
ELSI
Paper by Michael Froomkin that talks about the privacy implications of personal health records.
(296 KB PDF file. License: CC-BY-3.0)
social-life-info-15.pdf
ELSI
Paper by Kenneth Goodman regarding the use of decision support system in personal health records.
(825 KB PDF file. License: CC-BY-3.0)
Decision Support.pdf
ELSI
Primer by Reid Cushman about data protection in personal health records.
(190 KB PDF file. License: Copyrighted)
Primer Data Protection.pdf
ELSI
Primer by Reid Cushman about authentication of identity in personal health records and personal health applications.
(170 KB PDF file. License: Copyrighted)
Primer Authentication.pdf
ELSI
Document by Reid Cushman about the role of HIPAA in the world of PHRs.
(480 KB PDF file. Licensed: CC-BY-3.0)
PHR-HIPAA.pdf
ELSI
Primer by Reid Cushman about HIPAA and hows it applies to PHRs.
(675 KB PDF file. License: CC-BY-3.0)
Primer HIPAA PHR.pdf

 

 
Project HealthDesign is a national program of the Robert Wood Johnson Foundation