|NOTE: As of June 14, 2013, the Project HealthDesign website is now an archive and will not be updated regularly. Please feel free to use the site to learn about our work exploring the power and potential of personal health records. Direct any inquiries to firstname.lastname@example.org.|
We invite you to view and use the products, tools and information developed by our 2006-08 Ethical, Legal and Social Issues (ELSI) group to further expand the vision and use of personal health records (PHRs).
The University of Miami Ethics Program served as the ELSI advisory group from 2006-08, and included Kenneth Goodman, Ph.D., Reid Cushman, Ph.D., Michael Froomkin, J.D., Anita Cava, J.D., and Patricia Abril, J.D.
To download or access a file, select the link in the File column.
|Ethical, Legal and Social Issues (ELSI) Group|
||Guide to using open source licensing, it includes software licenses and Creative Commons licenses.
(330 KB PDF file. License: CC-BY-3.0)
|ELSI OpenSource Guide.pdf|
||Document regarding the forced sharing of Patient Controlled Health Records.
(92 KB PDF file. License: CC-BY-3.0)
||Paper by Michael Froomkin that talks about the privacy implications of personal health records.
(296 KB PDF file. License: CC-BY-3.0)
||Paper by Kenneth Goodman regarding the use of decision support system in personal health records.
(825 KB PDF file. License: CC-BY-3.0)
||Primer by Reid Cushman about data protection in personal health records.
(190 KB PDF file. License: Copyrighted)
|Primer Data Protection.pdf|
||Primer by Reid Cushman about authentication of identity in personal health records and personal health applications.
(170 KB PDF file. License: Copyrighted)
||Document by Reid Cushman about the role of HIPAA in the world of PHRs.
(480 KB PDF file. Licensed: CC-BY-3.0)
||Primer by Reid Cushman about HIPAA and hows it applies to PHRs.
(675 KB PDF file. License: CC-BY-3.0)
|Primer HIPAA PHR.pdf|