NOTE: As of June 14, 2013, the Project HealthDesign website is now an archive and will not be updated regularly. Please feel free to use the site to learn about our work exploring the power and potential of personal health records. Direct any inquiries to info@projecthealthdesign.org.
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News Archive

May 30, 2013

Call for Papers for Special Theme Issue of Personal and Ubiquitous Computing: Technologies for Patient-Defined and Patient-Generated Data

This theme issue calls for original papers on the capture, sharing, and integration of patient-defined and generated data into the clinical interchange and workflow.  Personal and ubiquitous technologies present opportunities to go beyond the traditional observation of signs and symptoms to include a complementary set of observations and activities that are centered in the patient’s worldview.

Authors interested in having a manuscript considered for this special issue should submit a 1-page proposal outlining the full manuscript by July 15, 2013.

For more information, click here

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May 3, 2013

Now through May 9: Help shape federal policy on Consumer eHealth!

The Office of the National Coordinator for Health Information Technology (ONC) wants public input to update the Federal Health IT Strategic Plan.

From now through May 9, 2013, you can submit comments through The Planning Room on the topic of discussion Consumer eHealth. Whether you’re a patient, consumer, provider, insurer or IT developer, you should have a voice in this process!

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April 26, 2013

Chronology.MD featured by AHRQ Health Care Innovations Exchange

The U.S. Agency for Healthcare Research and Quality (AHRQ) is featuring the work of the Chronology.MD team from Project HealthDesign on its Innovations Exchange website.

"Patients With Crohn’s Disease Report Symptoms and Behaviors Through Computer Applications, Leading to Better Self-Management and Provider–Patient Communication" details the scope of the Chronology.MD project, including expert commentary and ideas for adoption of the project's innovations.

AHRQ created the Health Care Innovations Exchange to speed the implementation of new and better ways of delivering health care. Project HealthDesign is thrilled for the Chronology.MD team for this well-deserved, national recognition!

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April 23, 2013

Chronology.MD's Linda Neuhauser invited to speak at National Library of Medicine

In March, Linda Neuhauser of Project HealthDesign's Chronology.MD team was invited to speak at the National Library of Medicine's spring lecture series, which highlights innovative approaches and best practices in evaluating health communication.

Dr. Neuhauser, along with Dr. Nancy Harrington, spoke about "The Brave New World of Health Communication Evaluation."

Watch the video of their presentation here.  Congratulations, Linda!

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April 9, 2013

Terrific new initiative for patients and developers to collaborate on instrument design

Thanks to a grant from the Robert Wood Johnson Foundation, the innovative patient network PatientsLikeMe has just announced a call for collaborators to “engage with a new platform for developing and evaluating patient-reported health outcome measures.”

They‘re looking for a small number of pilot users to work with the new platform.  These pilot users will have early access to the network’s Web-based software, free access to the group’s sizeable patient population, and professional support throughout the pilot project.

This is a competitive project – deadline for application is Friday, May 10, 2013.  The full information is here -- Questions should be directed to openscience@patientslikeme.com

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March 22, 2013

Project HealthDesign's comments to NIH on BD2K - "Big Data to Knowledge"

Recently, the National Institutes of Health launched Big Data to Knowledge (BD2K), a national initiative to address how to best manage and utilize the vast amount of biomedical data generated by new technologies, and asked for input from the extramural community.

Drawing on nearly eight years of working with our grantees to harness all kinds of patient data, particularly the novel type of data we call Observations of Daily Living (ODLs), Project HealthDesign suggests the NIH consider not only the amount of data, but expand its definitions to include novel forms of data like ODLs. 

Read Patricia Flatley Brennan's comments on BD2K here.

 

 

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March 8, 2013

Kathy Kim appointed to HITPC Consumer Empowerment Work Group

Congratulations to Kathy Kim of our iN Touch team on her appointment to the new Consumer Empowerment Workgroup of ONC’s Health IT Policy Committee!

The Consumer Empowerment Workgroup (CEWG) is charged with providing recommendations on policy issues and opportunities for strengthening the ability of consumers, patients, and lay caregivers to manage health and health care for themselves or others.

We’re sure that Kathy will bring the same energy and intellect to HITPC that she’s brought to her excellent work on the iN Touch team.  Congratulations, Kathy!

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March 7, 2013

Project HealthDesign research featured at ACU conference March 7-8

Congratulations to Kathy Kim of our iN Touch project and Rita Sembajwe of our BreathEasy team!  Both have been invited to present their work at the “Health IT for the Underserved” conference, sponsored by Association of Clinicians for the Underserved.  You can read more about Kathy and Rita’s work here.Read More
February 18, 2013

Informative Webinar on New HIPAA Omnibus Rule

The new Omnibus Rule made significant changes to the Health Insurance Portability and Accountability Act (HIPAA). 
For a clear explanation, watch this 1-hour webinar presented by Project HealthDesign legal and policy consultant Robert Belfort and colleague Helen Pfister of Manatt, Phelps & Phillips, LLP.

You can find more detail in this article, "HIPAA Omnibus Rule Reshapes Landscape for Health Care Privacy, Security Compliance" published by Bloomberg BNA.
 
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February 12, 2013

Upcoming webinar to explore the new HIPAA Omnibus Rule

On Tuesday, Feb. 12 at 1pm CDT, policy experts Robert Belfort and Helen Pfister of Manatt, Phelps & Phillips, LLP. will present an informative complimentary webinar:

The New HIPAA Omnibus Rule Is Reshaping the Healthcare Privacy and Security Landscape

On January 17, 2013, the US Department of Health and Human Services issued its long-awaited omnibus rule, changing a broad range of HIPAA privacy, security and breach notification requirements.

Every organization involved in health care—from providers to plans—will have to revise its privacy and security policies, privacy notices and business contracts to meet the new standards. What will you need to do to comply?

Register here!
 

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January 29, 2013

New $100K Challenge for Patient-Provider Collaboration!

Open mHealth has just launched a terrific $100k challenge with the Heritage Provider Network and UCLA to allow patients and clinicians to combine existing and emerging applications and devices to create integrated, personalized health solutions that enable improved disease management and better health outcomes. You can find full details and deadlines here.

Project HealthDesign applauds this unique and important challenge, especially because patients and providers will be working together to both generate and integrate health data.

The winner will be announced at the Health Datapalooza IV in Washington, DC, June 3-4, 2013.

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January 22, 2013

Project HealthDesign's comments on Meaningful Use Stage 3

We've submitted detailed comments to the ONC's Health IT Policy Committee on the most recent criteria for Meaningful Use of EHRs.  Read them here -- click on the pdf icon below our comment.  And feel free to tell us what you think of our efforts to bring patient data into the clinical conversation! info@projecthealthdesign.orgRead More
January 4, 2013

Project HealthDesign featured on mHealth Zone broadcast

Project HealthDesign was the centerpiece of mHealth Zone Live’s first radio broadcast of 2013, “Building the Bridge Between Patient and Provider in 2013.”  Listen to the dynamic interviews with National Program Director Patricia Flatley Brennan and iN Touch team leader Katherine Kim on the archived program, or download the show on iTunes.Read More
January 3, 2013

FDA joins partnership to speed patient access to medical devices

In case you missed the announcement, the FDA is stepping in as part of a public-private partnership that will promote "regulatory science" in order to streamline development and approval of medical devices. 

By joining forces with the independent nonprofit Medical Device Innovation Consortium, the FDA will help bring together funding, innovation and resources  so new medical devices can move through the development and assessment process without undue delay.  This partnership will allow device makers to have input from regulators from the start, and may help ensure new devices are safe, affordable, and readily available to the public.

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December 13, 2012

Meaningful Use Stage 3 may include Patient Generated Data – join the discussion

Kudos to Helen Pfister and Susan Ingargiola of Manatt Health Solutions for their enlightening article, published by iHealthBeat on December 11, about inclusion of Patient-Generated data in the proposed Stage 3 Meaningful Use criteria.  The article describes Project HealthDesign’s role in making this policy enhancement a real possibility. 

Project HealthDesign has long advocated for including patient voices in the clinical conversation.  Director Patti Brennan testified before the Health IT Policy Committee in June 2012 – and we plan to submit detailed comments to HITPC on this latest set of criteria. 

HITPC is actively soliciting ideas, opinions and stories, and you don’t have to be a healthcare professional to take part.  The deadline for submissions is 11:59pm ET on Monday, January 14, 2013.

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November 14, 2012

Project HealthDesign grantees featured at 2012 mHealth Summit

Congratulations to two of Project HealthDesign’s research leaders, who have been asked to speak at the 2012 mHealth Summit, Dec. 3-5 in Washington, DC. 

On Monday 12/3/12 at 2:45pm, Katherine Kim, M.P.H., M.B.A.,  project lead for our iN Touch team, will present her team’s research on the mHealth panel exploring mobile technologies in Weight Management

On Wednesday 12/5/12 at 11:25am, Barbara Massoudi, M.P.H., Ph.D., Co-Principal Investigator for our BreathEasy team, will be featured on a panel discussing Pulmonary Disease management.

The 2012 mHealth Summit will bring together more than 4500 leaders from 50 countries to explore, examine and debate the role of mobile technology in the transformation of health care in the 21st century.

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October 26, 2012

Learn more about Project HealthDesign – on video

As we enter the final months of Project HealthDesign, we invite you to revisit the innovative work done by our grantees over the past seven years. 

Focusing our five most recent grantees’ work, this brief video illustrates the project’s vision, challenges and promise.  Feel free to download and share this video – we want the message of Project HealthDesign to resonate far and wide.

We have visual stories for all nine of our Round 1 projects as well.  Just click on the project name and follow the links…Read More
October 17, 2012

dWellsense featured at WIRED Health

Project HealthDesign’s dwellsense project was featured at the recent Wired Health Conference in New York.  Watch Anind Dey of dWellsense explain how his project uses data sensors in the home…Read More
October 11, 2012

Project HealthDesign video now available for free download!

 We've had an excellent response to our 8-minute video, illustrating Project HealthDesign's most recent round of grantee research. Listen to some core participants describe the history, challenge, and promise about this exciting project. You can watch the video on YouTube.…Read More
October 1, 2012

Come see Project HealthDesign at Health2.0!

Be sure to stop by the Project HealthDesign booth on Monday, October 8 at the Health2.0 convention in San Francisco!  Learn about the exciting findings of our five most recent research teams . . . talk to the researchers themselves, check out sample devices and mHealth applications, and meet with members of Project HealthDesign to discuss your own ideas about using technology, personal health records and patient-generated data to transform health care and improve lives.…Read More
September 14, 2012

Project HealthDesign Webinar, "From the iPhone to the EMR: Can patients' personal health data help improve their clinical care?"

Join us for an insightful and interactive webinar sharing learnings from Project HealthDesign on 
Tuesday, September 25 from 12-1pm Eastern Time.
  • Learn how patients'
    observations of daily living -- such as eating habits, mood, and pain levels -- can be integrated into clinical care.
  • Hear about commercially viable technology solutions created by Project HealthDesign teams that help people monitor and improve their health.

Register nowWebinar details and call-in information will be provided to registrants.

open interactive PDF

 

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August 28, 2012

EHR Stage 2 Rules Released

The Office of the National Coordinator for Health IT (ONC) and The Centers for Medicare & Medicaid Services (CMS) today released final requirements for Stage 2 Electronic Health Records Incentive programs. The regulations can be found at:

   ·   CMS - http://1.usa.gov/RVx0bt

   ·   ONC - http://1.usa.gov/QP2jxm

A fact sheet on CMS's final rule is available at http://go.cms.gov/RjUTmw

A fact sheet on ONC's standards and certification criteria final rule is available at http://bit.ly/NUkIyt

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August 20, 2012

NIH SBIR Funding Opportunity Related to Sensor and Self-Report Data

Researchers interested in the sensor and self-report data may wish to investigate a new call for proposals from NIH and CDC titled "Real-Time Integration of Sensor and Self-Report Data for Clinical and Research Applications." The deadline for submission is Nov. 13, 2012. Additional information is available at grants.nih.gov.…Read More
August 15, 2012

Support for Common Platform Developer Environment Ends

For several years, Project HealthDesign has supported a Common Developer Environment (CDE) for the Project HealthDesign Common Platform. This support ended on Aug. 15, 2012. The Common Platform was developed by Sujansky & Associates, LLC as a set of software components that provide common, shared functions to a variety of personal health applications in order to increase interoperability. Learn more about Project HealthDesign's Common Platform.Read More
August 1, 2012

New Policy-Focused Paper from Project HealthDesign's Regulatory and Assurance Advisory Group

The Journal of Healthcare Information Management (JHIM) recently published “Lessons from Project HealthDesign: Strategies for Safeguarding Patient-Generated Health Information Created or Shared through Mobile Devices” (pdf), a new paper from Project HealthDesign’s Regulatory and Assurance Advisory Group. Experts from Manatt, Phelps & Phillips, LLP, and the Center for Democracy & Technology co-authored the paper, which appears in the summer issue of JHIM. Learn more.…Read More
July 9, 2012

Project HealthDesign Comments on NwHIN RFI

Project HealthDesign recently issued a comment in response to ONC’s call for public comments on a Request for Information on governance of the Nationwide Health Information Network (NwHIN). The RFI includes “a common set of ‘rules of the road’ for privacy, security, business and technical requirements will help lay the necessary foundation to enable our nation’s electronic health information exchange capacity to grow,” says Jodi Daniel, director of the Office of Policy and Planning at ONC. Read Project HealthDesign’s comment.Read More
June 18, 2012

Project HealthDesign at Nursing Informatics 2012

Whether you’ll be attending the 11th International Congress on Nursing Informatics in person or watching the webcast from afar, keep an eye out for Project HealthDesign at NI 2012. Patricia Flatley Brennan, Project HealthDesign national program director, will give the closing keynote presentation on Wednesday, June 27 at 10: 30 a.m. EST. Uba Backonja, Project HealthDesign researcher, will present a paper titled “Observations of Daily Living: Putting the "Personal" in Personal Health Record” on Tuesday, June 26. Co-authors include Kathy Kim, iN Touch principal investigator; Gail Casper, Project HealthDesign deputy director; Tim Patton, Project HealthDesign researcher; Edmond Ramly, Project HealthDesign researcher; and Patricia Flatley Brennan. The conference runs June 23-27 in Montreal, Canada. Learn more.Read More
June 8, 2012

Meaningful Use Workgroup Patient-generated Data Hearing

On Friday, June 8, Project HealthDesign National Program Director Patricia Flatley Brennan testified during a hearing held by the HIT Policy Committee's Meaningful Use Workgroup. Nikolai Kirienko, co-project director for Chronology.MD, also testified. Learn more about the event and read about Project HealthDesign's involvement.…Read More
June 4, 2012

Health Datapalooza June 5-6

Be sure to follow along this week during the Health Data Initiative Forum III, better known as the Heatlh Datapalooza. The event, which runs June 5-6 in Washington, D.C., brings together federal health data streams, developers, designers, and other health innovators. Access the live webcast at hdiforum.org, or follow the backchannel at #healthdata.…Read More
May 16, 2012

iN Touch Team Awarded Best Abstract for Health IT Theme at AcademyHealth

 
AcademyHealth recently recognized Project HealthDesign’s iN Touch team for their abstract, “iN Touch: Impact of a Mobile App for Overweight and Obese Youth.” Authors included Kathy Kim, iN Touch co-principal investigator, and co-authors Christina Sabee, co-principal investigator; Holly Logan, project manager; and Janelle Charles, research assistant. Along with Barbara Massoudi, co-principal investigator of Project HealthDesign’s BreathEasy team, Kim will also serve as a panelist at the Consumer Informatics and Mobile Health session on June 24 at AcademyHealth’s Annual Research Meeting.
 

 

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April 4, 2012

LGPL Artifacts Notice

We recently learned that visitors to the Project HealthDesign website may have been able to download Project HealthDesign software resources without first being prompted to formally accept the open-source license terms that govern use of the software. As indicated in various places on the Project HealthDesign website, these software resources are copyrighted and may only be used in ways authorized by the LGPL open source license. In order to avoid any confusion in the future, persons or entities who may have downloaded software from the Project HealthDesign website in the last nine months are requested to visit the LGPL form page and acknowledge acceptance of the LGPL terms and conditions that are applicable to the downloaded software. Please email us with questions.Read More
March 16, 2012

Project HealthDesign Comments on PCORI Draft National Priorities and Research Agenda

The Patient-Centered Outcomes Research Institute (PCORI) recently released its Draft National Priorities for Research and Research Agenda for public comment. Patricia Flatley Brennan, Project HealthDesign national program director, issued a comment on behalf of Project HealthDesign. In the comment, she encourages the organization to expand its definition of "patient-centered" such that it reflects ongoing engagement of patients in dialogue about priorities, clinical investments and therapeutic strategies. Read the comment.Read More
March 2, 2012

PCORI Accepting Public Comments on Priorities and Research Agenda

The Patient-Centered Outcomes Research Institute (PCORI) recently released its Draft National Priorities for Research and Research Agenda for public comment. Please consider reviewing these documents and providing your feedback on the proposed priorities and agenda. Public comments are due March 15.

For more information, visit the PCORI website.

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February 15, 2012

Deputy Director to Share Project HealthDesign Insights in Toronto

Later this month, Project HealthDesign Deputy Director Gail Casper, Ph.D., R.N., will share Project HealthDesign’s vision for personal health records (PHRs) with other health IT professionals and researchers. She will be speaking at a conference on “The Patient-Controlled Health Record: Transforming and impacting health and health care in Canada now,” which will be held Feb. 21-22 at McMaster University in Toronto, Canada.
Learn more about Dr. Casper.
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February 2, 2012

RWJF Celebrates 40 Years of Philanthropy

Together with all Robert Wood Johnson Foundation national programs, we recognize and celebrate the Foundation’s fortieth anniversary. For 40 years, RWJF has worked to improve health and health care, and has established a rich history of programs and areas of funding over the years.We’re pleased to have contributed to the Foundation's legacy.

Learn more.

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January 19, 2012

AHRQ Webinar on the Evaluation of Personal Health Record Systems and Their Impact on Chronic Disease

AHRQ is offering a series of webinars about health IT and health information exchange environments. Register for the Jan. 25 webinar  in this series to learn how health IT can impact the care of patients with chronic diseases.The event will be held at 12 p.m. CST (1 p.m. EST).

Speakers will include Peggy Wagner, Ph.D.(University of South Carolina), Carl Stepnowsky, Ph.D. (Veterans Medical Research Foundation), and Lygeia Ricciardi (Office of the National Coordinator for Health IT). Register now.
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January 10, 2012

Op-Ed by Past Project HealthDesign PI Featured on KevinMD

A recent guest post on KevinMD.com features Roger Luckmann, M.D., M.P.H., family physician and principal investigator of a past Project HealthDesign team from the University of Massachusetts Medical School. His team's work with Project HealthDesign resulted in an electronic pain and activity diary, and this system served as the foundation for his current work on a mobile application for patients with chronic pain. The new application will soon be available in the Mac App Store.
Read more.
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January 4, 2012

Project HealthDesign Explores Benefits of mHealth for Patients with Chronic Diseases

A recent post on the Center for Health Market Innovations Blog, “Five tips for mHealth program designers,” focuses on promising mHealth innovations from both emerging and industrialized markets. The article notes the emergence of mHealth technologies for patients with chronic diseases, and forecasts future growth in this area. Project HealthDesign’s work with personal health applications that track observations of daily living (ODLs) is featured as an example of mHealth’s potential to benefit patients with chronic diseases. Read more.Read More
December 9, 2011

Call for Papers on Bridging Clinical and Non-clinical Health Practices: Opportunities and Challenges

In preparation for the CHI 2012 conference, organizers invite you to submit a paper for the “Bridging Clinical and Non-clinical Health Practices: Opportunities and Challenges” workshop on Saturday, May 5. Researchers, designers, and health care practitioners interested in health care practices and human-computer interaction may submit position papers of no more than four pages in the ACM Extended Abstract format by Tuesday, Jan. 10. CHI 2012 will be held May 5-12 in Austin, Texas. Learn more.Read More
November 14, 2011

American Medical News Article on Wireless Monitoring Devices Mentions Project HealthDesign Teams

A Nov. 14 article in American Medical News, “Market booming for wireless monitoring devices,” mentions the five current Project HealthDesign teams and their work with the devices. The article includes information about each team’s unique efforts to capture information about observations of daily living and incorporate the resulting data into clinical care conversations between patients and clinicians. Read more.Read More
October 26, 2011

New Reports Detail Early Lessons from Working with Patient-Sourced Data

We recently released two new reports that highlight early lessons from working with patient-sourced ODL data. The "Project HealthDesign: Early Findings and Challenges" report explores themes and challenges that are common among our current teams. The draft report, "Project HealthDesign: Technical Architectures and Implementations," includes more detailed, technical information about each team’s technical architecture.Read More
October 26, 2011

Project HealthDesign Director Receives Virginia K. Saba Nursing Informatics Leadership Award

Sigma Theta Tau International recently selected Project HealthDesign Director Patricia Flatley Brennan, Ph.D., R.N., as the Virgina K. Saba Nursing Informatics Leadership Award recipient for 2011. The award recognizes Dr. Brennan’s contributions to the field of nursing informatics research, as well as her international leadership role in the field. Brennan will receive the award on Oct. 30 at the society’s 41st Biennial Convention in Grapevine, Texas.Read More
October 14, 2011

BreathEasy Principal Investigator Receives AMIA Leadership Award

The American Medical Informatics Association (AMIA) recently selected BreathEasy Co-Principal Investigator Barbara Massoudi, M.P.H., Ph.D., as a prestigious Leadership Award recipient. The award is in honor of her success in advancing the association’s public health informatics activities. She will receive the award the AMIA Annual Symposium Leadership Dinner in Washington, D.C. Learn more about Massoudi's work with Project HealthDesign's BreathEasy team.Read More
October 3, 2011

NIH Announces mHealth Grant Opportunities

Together, the National Institute of Nursing Research (NINR) and the Office of Dietary Supplements (ODS) recently announced three grant opportunities to stimulate research utilizing mobile health (mHealth) tools. The announcement encourages mHealth innovations that meet the needs of underserved populations in the areas of effective patient–provider communication, adherence to treatment and self-management of chronic diseases. Research project applications are due Oct. 5, small grant program and exploratory/developmental research grant award applications are due Oct. 16.Read More
September 23, 2011

Project HealthDesign at Health 2.0 Conference

Whether you’re attending the Health 2.0 Conference in person or watching the backchannel from afar, be sure the join the conversation as Project HealthDesign attendees and other friends and grantees of the Robert Wood Johnson Foundation’s Pioneer portfolio venture to the conference. We’re excited to see where the conversation leads as we send representatives from our current teams, national program office and National Advisory Committee. In preparation for the event, stop by Pioneering Ideas to leave your input on the challenges and benefits of self-tracking health data, and follow us on Twitter (@PrjHealthDesign) to share your thoughts with us during #health2con, which runs Sept. 25-27.Read More
September 8, 2011

Apps Against Abuse Developer Challenge

The Office of the National Coordinator for Health Information Technology has issued a new Innovation Initiative (I2) developer challenge, which encourages developers and designers to create innovative applications to help young adults prevent violence and abuse. Entries should offer individuals a way to connect with trusted friends in real-time to prevent abuse or violence from occurring. The challenge closes Oct. 17, 2011. Learn more about the Apps Against Abuse Challenge.Read More
August 23, 2011

Deputy Director Shares Project HealthDesign Vision with Local and International Audiences

Gail Casper, Ph.D., R.N., Project HealthDesign deputy director, recently spoke to elders at Oakwood Village West in Madison, Wis. about her work with Project HealthDesign and patient-facing technologies. Much like her recent engagement as an eHealth keynote speaker at the CeBIT Conference in Sydney, Australia, this outreach opportunity allowed her to share her vision for the future of health and health care, as well as the vision behind Project HealthDesign’s current studies. Learn more about Dr. Casper.Read More
July 22, 2011

Teams Share Insights on Personal Health Application Development on a Shared Platform

Co-authored by past teams Assisting Older Adults with Transitions of Care (at the University of Colorado at Denver) and the My-Medi-Health (at Vanderbilt University Medical Center), a paper in the Journal of Medical Internet Research provides a case report for developing two complementary personal health applications on a shared personal health record (PHR) platform. The insights and recommendations the teams share in this paper provide many take-aways for the successful development of personal health applications. Read the paper.Read More
July 7, 2011

Denver Team Publishes New JMIR Paper About Using Personal Health Applications with Elders

Stephen Ross, M.D. and Katie Siek, Ph.D., principal investigators of Assisting Older Adults with Transitions of Care, recently published "Older Adults with Multi-Morbidity: Medication Management Processes and Design Implications for Personal Health Applications" in the Journal of Medical Internet Research.
Read the paper to find out how elders responded to this new type of technology.
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June 2, 2011

Complete Guide to Self-Tracking Health Information

Are you interested in using personal health technology tools to collect data about your health and help inform you as you make health-related decisions? If so, then the Complete Guide to Self-Tracking, a new resource from the Quantified Self community, will help you discover devices and technologies to help you get started. Learn more.Read More
May 9, 2011

SMART Health App Challenge

Are you a developer or designer? Then put your skills to work to improve health! Participate in the SMART Health App $5K Challenge by building an HTML5 web application that aids patients, providers or researchers and that uses patient-level data delivered through the SMART API. Entries due May 31.Read More
April 25, 2011

SMART Health App Challenge and DiabetesMine Design Challenge

Are you a developer or designer? If so, then put your skills to work to improve health! First, participate in the SMART Health App $5K Challenge by building an HTML5 web application that aids patients, providers or researchers and uses patient-level data delivered through the SMART API. Entries are due May 31. Then enter the DiabetesMine™ $7K Design Challenge by creating a new diabetes device or web application that improves life for patients with diabetes. Entries are due April 29.Read More
February 28, 2011

Project HealthDesign comments on Stage 2 meaningful use criteria

Project HealthDesign recently submitted public comments to the Health IT Policy Committee (HITPC) on the proposed Stage 2 meaningful use criteria. The comments encouraged HITPC to consider how patients might become beneficiaries of the meaningful use of HIT in Stages 2 and 3. Comments on several specific criteria urged the committee to consider Project HealthDesign project teams’ findings as they become available throughout 2011. Read more.Read More
January 31, 2011

Urging policymakers to keep the patient in focus

Project HealthDesign Director Patricia Flatley Brennan, R.N., Ph.D., recently submitted a public comment to PCAST on its December 8 report, “Realizing the Full Potential of Health Information Technology to Improve Healthcare for Americans: The Path Forward.” The report proposes a technical exchange structure to guide future meaningful use requirements as the federal EHR incentive programs, which are part of the American Recovery and Reinvestment Act of 2009, progress. Read Dr. Brennan’s comment.Read More
December 10, 2010

Seeking to impact future policies on PHR privacy and security

We are delighted to have had the opportunity to influence future policies regarding personal health record (PHR) privacy and security by submitting comments to the Office of the National Coordinator for Health Information Technology following their recent PHR Roundtable.

Three of our project teams submitted comments related to consumer expectations about the collection and use of health information; these comments reflect real expectations and concerns held by patients participating in their projects. Sujansky & Associates, technical partners to Project HealthDesign, submitted recommendations based on Project HealthDesign patient expectations concerning the privacy and security of PHRs. And finally, the national program office (NPO) shared thoughts on the types of data being included in and rapid evolution of PHRs. Read our comments.

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September 27, 2010

LaFollette Policy Report: Project HealthDesign Reports on Meaningful Use in Electronic Health Records – Beyond Simple Access.

Project HealthDesign's National Program Director Patricia Flatley Brennan and Industrial and Systems Engineering student Edmond Ramly reported on the progress and importance of integrating meaningful use with electronic health records in the fall issue of the LaFollette Policy Report. Brennan and Ramly explain this integration as a way to allow the patient access to all facets of his/her medical record in order to integrate clinical observations of daily living made by the patient and family caregivers into the medical record.   This idea creates a personal health record that allows many more services than just simple access to information.  It creates a meaningful flow of information that can be utilized by patients and doctors to improve treatments and health for the patient. Project HealthDesign’s goals support the advancement of meaningful ideas in information technology implemented by the Health Information Technology for Economic and Clinical Health Act....Learn More

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August 23, 2010

Susannah Fox Takes the "Power of Mobile" into the Future and Project HealthDesign is there

In her article, "The Power of Mobile," Susannah Fox, Associate Director, Digital Strategy declares an end to the online health care revolution and argues that "It's time to change our frame of reference."  It's time, she says, to start creating a new civilization based on the foundations that mobile technology is creating.  And in her article Project HealthDesign represents a pioneer to that new frontier of HIT.  To illustrate, she writes about the way Project HealthDesign created a tool for tracking the moods of chronically ill teens as a way to help those same teens take a more responsible role in maintaining their health. In Rochester, Minn., at Transform 2010 - Thinking Differently About Health Care, a symposium on health care advances in delivery and experience sponsored by the Mayo Clinic for Innovation, Fox also gave of presentation on the same subject. She spoke about the evolution of mobile information technology and its progress into the future. Learn More.Read More
August 18, 2010

Nikolai Kirienko Illustrates the Importance of Project Health Design for the Wall Street Journal

Crystallizing the significant visions of Project HealthDesign takes the insight from individuals living on two sides of a coin: the researcher and the patient. And Nikolai Kirienko stands in the unique position as a representative of both sides. Kirienko's personal and professional dedication to Project HealthDesign's important work were presented in the Wall Street Journal on August 18. The article recounts the story of Kirienko, a University of California-Berkeley Undergraduate, who suffers from Crohn's disease and who also works with researchers on Project HealthDesign. Their team endeavors to create a smartphone that tracks the complex fluctuations of Crohn's disease symptoms on a daily basis. And what he shares with the Wall Street Journal epitomizes the significance of Project HealthDesign's work in HIT. Learn MoreRead More
August 11, 2010

2010 Health 2.0 Developer Challenge

RWJF Pioneer Portfolio and California HealthCare Foundation are seeking innovative designers to forge ahead with the Project HealthDesign 2006-2008 projects.  Using the Project HealthDesign  visual stories the 2010 Health 2.0 Developer Challenge is asking developers to build apps for the web, smart phones or tablets that demonstrate the features envisioned by 2006-2008 team designers. The challenge mandates that the apps must be compatible with commercially available PHR services capable of storing data securely. Entries will be judged on design quality and their degree and robustness of functionality. Learn moreRead More
April 20, 2010

Project HealthDesign Director Provides Testimony to Meaningful Use Workgroup

Patricia Flatley Brennan, RN, PhD, FAAN, director of Project HealthDesign provided testimony at a public hearing hosted by the Office of the National Coordinator’s Meaningful Use Workgroup on consumer engagement in health care. She explained that achieving a paradigm shift to a more patient-centered health care system requires that patient-generated data – called observations of daily living (ODLs) – be captured, interpreted and incorporated into clinical care. Read Dr. Brennan's TestimonyRead More
April 14, 2010

Survey Finds Personal Health Records Motivate Consumers to Improve their Health

According to a study released by the California HealthCare Foundation Americans who have access to their health information through personal health records (PHRs) report that they know more about their health, ask more questions, and take better care of themselves than when their health information was less accessible to them in paper records...Read the ReportRead More
April 5, 2010

Project HealthDesign Workshop 2 Video Available

In March, Project HealthDesign grantees and members from the core resource teams came together in Nashville at the Vanderbilt Center for Better Health to participate in our second design workshop. All of the video and documents from this workshop are online and available for viewing. In addition to group activities, guests Dr. Kevin Johnson presented on ODLs in clinical practice and Dr. David Ahern presented on evaluation strategy. Workshop Webjournal  Read More
March 5, 2010

Manatt and CDT to Provide Regulatory and Assurance Support to Project HealthDesign

Manatt, Phelps & Phillips, LLP, a law firm specializing in health information technology and privacy, and the Center for Democracy and Technology (CDT), the country’s foremost consumer expert on health information privacy policy, are partnering to serve as regulatory and assurance advisors to Project HealthDesign.

Together, Manatt and CDT will provide the Project HealthDesign grantees with legal and policy advice to support their provision of personal health records, including the integration of patient-generated observations of daily living. They will also contribute to the more global aim of monitoring and influencing public policy that will support continued innovation in the creation of PHRs and other health IT tools designed to place patients in greater control of their health care.
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March 5, 2010

Project HealthDesign Director Featured in iHealthBeat HIMSS Preview

As a preview to the annual Healthcare Information and Management Systems Society Conference Patricia Flatley Brennan, Director of Project HealthDesign, was featured in an audio story from iHealthBeat. Her comments focus on moving away from thinking of personal health records as repositories of data and instead seeing them as platform for action, containing the kind of information patients notice and understand...Listen to the Audio ReportRead More
March 3, 2010

Project HealthDesign Announces 2010 Projects

We are excited to announce the five grantee teams that are working to demonstrate how to improve the health and well-being of people with chronic disease by helping them capture, understand, interpret and act on information gathered from their observations of daily living (ODLs).
 
  • Carnegie Mellon University
  • RTI International and Virginia Commonwealth University
  • San Francisco State University
  • University of California, Berkeley
  • University of California, Irvine and Charles Drew University
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January 19, 2010

RWJF Feature: The Power and Potential of Personal Health Records

This web feature from the Robert Wood Johnson Foundation highlights Project HealthDesign and traces the history and development of PHRs, discussing their role within the larger health IT arena. It also highlights a shift in emphasis from data captured in clinical encounters to the strong potential of patient-generated observations of daily living (ODLs)...Read the FeatureRead More
November 19, 2009

Project HealthDesign Director Receives Leadership Award

The American Medical Informatics Association (AMIA) selected Project HealthDesign National Program Director Patricia Flatley Brennan, RN, PhD, FAAN, FACMI, to receive a prestigious 2009 Leadership Award for her work with Project HealthDesign, creating a new vision for personal health records.  Leadership Awards are given by the AMIA for outstanding volunteer leadership and service to the association or in the field of medical informatics. The award was presented to Dr. Brennan at the AMIA Annual Symposium Leadership Dinner on Nov.14 in San Francisco, California.Read More
November 5, 2009

Informational Bidders' Call

An informational Bidders' Call will be held on Monday, November 9, at 10:00 AM Central time. To participate, please contact Project HealthDesign at (877) 674-3170 before 4:00 PM Central time on Friday, November 6.
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October 30, 2009

Project HealthDesign Seeks Regulatory and Assurance Consulting Proposals

Project HealthDesign is seeking proposals for Regulatory and Assurance Consulting. For information about responding to RFQP #10-5215 please contact Carl Hubbard (608) 262-6557 /FAX (608) 262-4467; EMAIL: chubbard@bussvc.wisc.edu at University of Wisconsin-Madison Purchasing Services. Responses to the RFPQ are due on November 16, 2009.Read More
August 11, 2009

2009 Public Media Award for Project HealthDesign

Project HealthDesign was selected to receive a 2009 Public Media Award from the Sigma Theta Tau International Honor Society of Nursing (STT). The award recognizes “Grantee Videos,” for capturing the vision of nine grantee projects through vignettes that illustrate the potential of personal health applications to help individuals and families better manage their health. The award will be presented at STT’s Fortieth Biennial Convention Tribute Luncheon, November 1. To learn more about Sigma Theta Tau awards, see Awards. You can view the grantees visual stories on our YouTube channel.Read More
July 1, 2009

Living Environments Laboratory Chosen for Wisconsin Institute for Discovery

Project HealthDesign National Program Director Patricia Flatley Brennan, R.N., Ph.D., is among five University of Wisconsin-Madison faculty whose research proposals will establish the Wisconsin Institute for Discovery (WID). Dr. Brennan’s proposal for the Health Technology Design in the Living Environments Laboratory is aimed at accelerating the development of personal care diagnostic and therapeutic technology with the goal of supporting individuals and families in the detection, recognition and management of health problems.

“The Living Environments Laboratory research will help expand Project HealthDesign’s work,” according to Dr. Brennan, “by developing new devices and creative technologies to better understand health in everyday living. “This is a perfect complement to Project HealthDesign, which seeks to demonstrate how to improve the health and wellbeing of people with chronic disease by helping them capture, understand, interpret and act on information about the patterns of their everyday lives.”...Read More

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June 30, 2009

National Advisory Committee Selected To Help Advise Second Round of Project HealthDesign

Project HealthDesign is pleased to announce new additions to its national advisory committee (NAC), comprising leaders in academia, technology, clinical practice and health and health care. Selected for a three-year term of service, the committee members include such industry luminaries as healthcare IT innovators Dr. John Halamka of the Harvard Medical School and Beth Israel Deaconess Medical Center and Dr. Paul Tang of the Palo Alto Medical Foundation. The NAC members were chosen based on leadership in their respective fields, as well as their commitment to the goals of the program. As a part of their responsibilities, members will review submissions received in response to the program’s recent call for proposals, make recommendations on awards selections and provide RWJF with advice on overall program strategy. Full NAC list
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June 17, 2009

Project HealthDesign Releases Findings and Resources from Initial Phase

The work products and final report from the initial phase of Project HealthDesign are currently available for download. The report captures key learnings from the work of the program’s first nine grantee teams, as well as from its efforts to develop a common platform and explore the ethical, legal and social issues tied to next-generation personal health records (PHRs). We are pleased to also release all of the open, sharable source code and other technical code documentation produced by the grantee teams in developing their PHR application prototypes. View ResourcesRead More
Project HealthDesign Webinar, "From the iPhone to the EMR: Can patients' personal health data help improve their clinical care?" 

Join us for an insightful and interactive webinar sharing learnings from Project HealthDesign on Tuesday, September 25 from 12-1pm Eastern time.

  • Discover why patients tracking what heppens outside the clinician's office is important to improve care of chronic diseases.
  • Learn how patients' observations of daily living -- such as eating habits, mood, and pain levels -- can be integrated into clinical care.
  • Hear about commercially viable technology solutions created by Project HealthDesign teams that help people monitor and improve their health.
  • Hear how research teams used technology to actively engage patients in their health and achieve better clinical decision-making.

Speakers will include Steve Downs (Robert Wood Johnson Foundation), Patricia Flatley Brennan, PhD, RN (University of Wisconsin-Madison), Katherine Kim, MPH, MBA (San Francisco State University), Stephen Rothemich, MD (Virginia Commonwealth University), and Michael Christopher Gibbons, MD, MPH (Johns Hopkins University).  

Register now. Webinar details and call-in information will be provided to registrants.

 
Project HealthDesign is a national program of the Robert Wood Johnson Foundation