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New E-primer – The Need to Know: Addressing Concerns about Privacy and Personal Health Records
12-12-07
Interest in patient privacy and confidentiality is as old as the practice of medicine itself. It is central to determining how health care providers and other institutions keep records on patients. With the emergence of personal health records (PHRs) and the fact that consumers are increasingly playing a more active role in their health, privacy is receiving increased attention in the consumer, health technology and policy arenas. While traditional PHRs have focused primarily on health information – such as reminders, medications, and lab results – that are generated through interaction with the health care system, Project HealthDesign grantees are looking at information that consumers generate in the course of their daily lives. By offering this expanded view of PHRs, Project HealthDesign raises additional privacy-based policy questions. The latest Project HealthDesign e-primer explores how new ways of thinking about PHRs raise new issues about privacy, and highlights through examples how new tools for patient self-management expose both the promise and the challenge of maintaining personal privacy. Click here to read the e-primer.
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