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PHR e-Primers Health in Everyday Living – E-Primer #3
Personal health records (PHRs) are becoming more than just static repositories of health information -- they are maturing into powerful, user-centered tools that can transform people's health by coordinating data drawn not only from health care institutions but also generated by consumers themselves, in the course of their daily lives. Such observations of daily living (ODL) - which include information on such activities and experiences as sleep, diet, exercise, stress and adherence to medication regimens - is one area of PHR development that is truly user-directed, both in the kind of information contained in the record and the health decisions that stem from it. Ideally, patients will be able to gather and analyze their own ODL data via next-generation PHRs to determine ways to live healthier, rather than simply manage their health conditions. The latest e-primer examines the importance of gathering everyday observations, how the Project HealthDesign teams are incorporating ODL into their designs and what this means for the future of PHRs.
The Need to Know: Addressing Concerns About Privacy and Personal Health Records– E-Primer #2
Interest in patient privacy and confidentiality is as old as the practice of medicine itself. It is central to determining how health care providers and other institutions keep records on patients. With the emergence of personal health records (PHRs) and the fact that consumers are increasingly playing a more active role in their health, privacy is receiving increased attention in the consumer, health technology and policy arenas. While traditional PHRs have focused primarily on health information – such as reminders, medications, and lab results – that are generated through interaction with the health care system, Project HealthDesign grantees are looking at information that consumers generate in the course of their daily lives. By offering this expanded view of PHRs, Project HealthDesign raises additional privacy-based policy questions. The latest Project HealthDesign e-primer explores how new ways of thinking about PHRs raise new issues about privacy, and highlights through examples how new tools for patient self-management expose both the promise and the challenge of maintaining personal privacy.
New Vision for Personal Health Records – Project HealthDesign – E-Primer #1
Project HealthDesign: Rethinking the Power and Potential of Personal Health Records has funded nine teams of enterprising health and technology pioneers to design ways that personal health records (PHRs) can reflect and respond to what is happening in a user’s daily life, rather than be a static repository of their medical information. They hope to usher in widespread development of powerful PHR systems that link personal medical data with smart, practical tools that help patients manage their health and enhance their care. “A New Vision for Personal Health Records” explains how Project HealthDesign’s vision of next-generation PHRs can empower patients to improve their health.
This is the first in a series of e-primers focusing on topics relevant to national discussions about the design and implementation of patient-centered PHR systems. Funded by the Pioneer Portfolio of the Robert Wood Johnson Foundation with additional support from the California HealthCare Foundation, Project HealthDesign is administered by a national program office at the University of Wisconsin-Madison. Participants are designing and testing a suite of PHR tools and applications that work together to help people achieve their specific health goals in an integrated fashion.
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