NOTE: As of June 14, 2013, the Project HealthDesign website is now an archive and will not be updated regularly. Please feel free to use the site to learn about our work exploring the power and potential of personal health records. Direct any inquiries to
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HomePrivacy Policy

Privacy Policy

Project HealthDesign respects your privacy.  This Privacy Policy applies to all of the services and websites offered by Project HealthDesign and will tell you what information we collect about you and your use of the services when you access the Project HealthDesign website.

Information Collection and Use

The Project HealthDesign website collects information about you when you visit the website, post messages to the bulletin board, or register on the site.  For each visitor to our webpage, our web server automatically recognizes the consumer's domain name (where possible).  We also collect the email addresses of users who post messages to our bulletin board and users who communicate with us through email.  Aggregate information is collected on what pages consumers access or visit.  Additionally, we automatically collect information about your computer hardware and software, including browser types, domain names, access times and referring website addresses.

Project HealthDesign does not collect personally identifiable information from you unless you voluntarily provide it to us, for example, by subscribing to our mailing list, filling in a form, or downloading GNU Lesser General Public License Version 3 (“LGPL”) licensed materials. For our mailing list, we use a third party vendor that maintains and stores our email contacts. This vendor uses web beacons – small one pixel “.GIF” files that monitor aggregate website and email access.

Project HealthDesign uses “cookies” – small text-files that contain a unique identifier for your browser - to collect non-personally identifiable information from you that allows us to track your use of the website.  The information collected by the cookies (i) records current session information, (ii) allows us to statistically monitor how many people are using the website, (iii) records which websites refer visitors to our site, and (iv) for what purposes these actions are being taken.  Our cookies are sent to a third party provider that reports in an aggregate form the traffic to our website.

Most browser software can be set to reject all cookies.  If your browser is configured not to accept cookies or you reject our cookies, you will not be able to access the Project HealthDesign Download Site.  You do not have to accept our cookies to access the other information on the website.  There could be some additional limitations, however, when using other parts of the site.

The Project HealthDesign download site requires you to provide your name and email address. This personal information will be saved to a secure database together with your computer’s IP address. This information allows us to record your acceptance of the Terms and Conditions of the Project HealthDesign Download Site for materials licensed under the LGPL. Your personally identifiable information - name, email, institution, and IP address - will only be used for our internal records and will not be used for establishing any contact with you.
Accessing the Project HealthDesign Common Platform Developer Environment (PHD-CDE) requires that you provide your name, email address, and gender (required to create a user account on the Common Platform). This information allows us to record your acceptance of the relevant Agreements, contact you regarding issues with your accounts, and set up an appropriate user account on the Common Platform.

Project HealthDesign will not monitor nor access any of the simulated health data you choose to store in the Project HealthDesign Common Platform Developer Environment (PHD-CDE), All other information we collect is used to improve the content of our webpages, improve the quality of our services, and provide general statistics about visitors.  Project HealthDesign does not sell, rent, or lease personally identifiable information to any third parties.  With the exception of simulated health data you choose to store in the PHD-CDE, information we collect may be shared with vendor partners for the above purposes but will not be sold or disclosed for any other purpose.  We may also share collected information with our partners or affiliates for the purposes of research, administration and oversight.  We will only release your personal information to other third parties to comply with valid legal requirements such as a law, regulation, search warrant, subpoena, or court order or, as deemed necessary in Project HealthDesign’s discretion, to protect the legal or property rights of Project HealthDesign, a website user, or a third party, or to prevent personal injury.

Comments posted on our blog site will display the name of the author and will have a link to the URL you provided with your comment. The email address we request from you will only be used as a direct communication method, if needed, between the blog’s writer and you.


Project HealthDesign is committed to protecting the privacy of children.  Neither Project HealthDesign nor any of its services are designed or intended to attract children under the age of 13.  We do not collect personally identifiable information from any person we actually know is under the age of 13.

External Links Disclaimer

The Project HealthDesign website may contain links to documents or other content on third party websites that are outside the domain and, therefore are not managed or controlled by us.  These links do not represent an endorsement of the third party sites or attest to the correctness, accurateness, appropriateness, or validity of the information found through these links.  We include these links because they are related to our work or are relevant to the work we are doing.  Once you enter another website, be aware that Project HealthDesign is not responsible for the privacy practices of such other sites.  We encourage you to look for and review the privacy policy of each and every website that you visit through a link on

Security of Your Personal Information

Project HealthDesign has implemented security policies and technology intended to prevent unauthorized access to your personal information.  Our staff respects your confidentially and follows an internal security policy for the use of personally identifiable information.  Additionally, we have security measures in place in our physical facilities to protect against the loss, misuse, or alteration of your personal information.

Correction and Removal of Your Information

If you wish to view, change, update, or delete the personal information you have submitted to us, you may do so by emailing or contacting us at the address listed below.

If you do not want to receive email from us in the future, please let us know by editing your subscriber preferences
here.  The system will send you an email with information on how to unsubscribe.


Please contact the Project HealthDesign National Program Office with any question or concerns about this Privacy Policy at or

University of Wisconsin-Madison School of Nursing
600 Highland Avenue, CSC H6/243
Madison, WI

Project HealthDesign may change, update, or modify this Privacy Policy at any time.  These changes may allow for more or different uses of your information, so please review this Policy carefully.  Any changes, updates or modifications to the Privacy Policy will be posted on this website with the corresponding date of the revision.  If you do not accept the Privacy Policy, you should cease using the Project HealthDesign website.  Your continued use of the Project HealthDesign website after changes, updates, or modifications have been posted to the Privacy Policy will represent your acceptance of the new Privacy Policy.  You can request to opt out of any new uses of your information by contacting Project HealthDesign.  Please check this website periodically.

The Privacy Policy will apply to any successor entity in connection with a termination of licensing agreements, a consolidation, a sale of assets or other changes respecting ownership or control of the website, until such successor entity amends or updates this Policy.

Last updated: 2/16/2010

Project HealthDesign is a national program of the Robert Wood Johnson Foundation