Project HealthDesign - Rethinking the Power and Potential of Personal Health Records

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Round 1 Work Products Table

Welcome to Project HealthDesign’s table of downloadable work products from Round 1.  We invite you to view and use the tools and information developed by our grantee, technical and ELSI teams to further expand the vision and use of Personal Health Records (PHRs).

The work products placed in this table include source code and documentation for the grantee applications created during our first round of funding, other grantee work products, the common platform components, work products the ELSI team and general project information.  

The table is organized alphabetically, by project.  You may also use the search function to find key words in any column.

 All files are covered by open source Lesser General Public License (LGPL) Version 3 or Creative Common Attribution 3.0 license.  A small number of files carry other copyrights or licenses, and you are responsible for meeting the terms of use of these documents.

To download a file

  • click on the file link in the Download File column

  • If the file carries an LGPL license, when you click on the file, you will be asked to accept the terms and conditions of the licensing agreement and to complete a brief download form.  Once you have accepted the terms and conditions, you will be returned to the table and can download the files.  You will not have to accept them again to download additional LGPL licensed files.

  • If the file carries a Creative Commons license, you can download it directly from this table. Click on the link next to the Creative Commons icon at the bottom of the table to view the licensing terms.

  • For general terms of use associated with these documents, see Terms of Use.


If you have questions or need assistance using the Project HealthDesign Work Products download table, contact us at
info@projecthealthdesign.org
 

Grantee / Project Description Download File Size Supported Platform
National Program Office - Alliance PHR Document regarding the next generation electronic personal health records. By Project HealthDesign National Director P.F. Brennan, RN, PhD, FAAN. Word document. License: CC-BY-3.0 AllianceePHRs.doc 36 KB All Platforms
         
Common Platform by Sujansky & Assoc. Compiled version of the Common Platform, includes deployment Guide. Zip File. License: LGPL. Now available for testing.
Project HealthDesign CommonPlatform-BIN.zip 1.4 MB All Platforms
Common Platform Common Platform Deployment Guide. PDF file. License: CC-BY-3.0.
Project_HealthDesign CommonPlatform Deployment_Guide.pdf 760 KB All Platforms
Common Platform HTML documentation of the common platform components with their corresponding WSDL and XSD description. Zip File. License: LGPL Project_HealthDesign CommonPlatform HTML_Guide.zip 4.7 MB All Platforms
Common Platform Source code of the Common Platform, includes deployment instructions. The code is written in Java. Zip File. License: LGPL. Now available for testing. Project_HealthDesign CommonPlatform-SRC.zip 1.5 MB All Platforms
Common Platform Common Platform Architecture Technical Specifications presentation. PDF. License: CC-BY-3.0 Project_HealthDesign CommonPlatform Tech_Spec_Present.pdf 70 KB All Platforms
Common Platform Common Platform Components: Web Services Client Guide. PDF file. License: CC-BY-3.0 Project_HealthDesign CommonPlatform WebServicesClientGuide.pdf 730 KB All Platforms
Common Platform Source code of the Common Platform that includes all the WSDL files and the XSD files. Zip File. License: LGPL Project_HealthDesign CommonPlatform WSDL_v1.2.zip 29 KB All Platforms
 Common Platform Compiled version of the Common Platform Sample Application, includes a deployment guide. Zip File. License: LGPL. Now available for testing.  Project_HealthDesign CPAdminPortal-BIN.zip 4.0 MB All Platforms
 Common Platform Source code of the Common Platform Sample Application, includes deployment guide. Zip File. License: LGPL. Now available for testing. Project_HealthDesign CPAdminPortal-SRC.zip 600 KB All Platforms
         
ELSI Group - Various documents Guide to using open source licensing, it includes software licenses and Creative Commons licenses. PDF File. License: CC-BY-NC-SA-3.0 ELSI OpenSource Guide.pdf  330 KB All Platforms
ELSI Group Document regarding the force sharing of Patient0Controlled Health Records. PDF File. License: CC-BY-NC-SA-3.0 Forced sharing.pdf 92 KB All Platforms
ELSI Group Paper by Michael Froomkin that talks about the privacy implication of personal health records. PDF File. License: CC-BY-NC-SA-3.0 social-life-info-15.pdf 296 KB All Platforms
ELSI Group Paper by Kenneth Goodman regarding the use of decision support system in personal health records. PDF File License: CC-BY-3.0 Decision Support.pdf 825 KB All Platforms
ELSI Group Primer by Reid Cushman about data protection in personal health record. PDF File. License: Copyrighted Primer Data Protection.pdf 190 KB All Platforms
ELSI Group Primer by Reid Cushman about authentication of identity in personal health record and personal health applications. PDF File. License: Copyrighted Primer Authentication.pdf 170 KB All Platforms
ELSI Group Document by Reid Cushman about the role of HIPAA in the world of PHR. PDF File. Licensed: CC-BY-3.0 PHR-HIPAA.pdf 480 KB All Platforms
ELSI Group Primer by Reid Cushman about HIPAA and hows it applies to PHRs. PDF File. License: CC-BY-3.0 Primer HIPAA PHR.pdf 675 KB All Platforms
         
RTI - At-Risk Sedentary Adults Group Discussion Guide Session #1 (Consumers/End users), instructions and questionnaire for structured interview. Word document. License: CC-BY-3.0 ActivHealth - Discussion Guides (Session #1).doc  124 KB All Platforms
 At-Risk Sedentary Adults Group Discussion Guides Session #2 (End Users/Patients, Healthcare Providers), instructions and questionnaire for structured interview. Word document. License: CC-BY-3.0 ActivHealth - Discussion Guides (Session #2).doc  90 KB All Platforms
 At-Risk Sedentary Adults Group Discussion Guides Session #3 (Consumers/End-users, Healthcare Providers), instructions and questionnaire for structured interview. Word document. License: CC-BY-3.0 ActivHealth - Discussion Guides (Session #3).doc 110 KB All Platforms
 At-Risk Sedentary Adults Report of Findings from the Round 1 Interviews of Phase 1. Word document. License: CC-BY-3.0 ActivHealth - Phase 1 - Round 1 Findings Report.doc 290 KB All Platforms
 At-Risk Sedentary Adults ActivHealth System Flow Diagram. Word document. License: CC-BY-3.0 ActivHealth flow diagram.doc 52 KB All Platforms
 At-Risk Sedentary Adults Report of Findings From the Round 2 Interviews of Phase 1. Word document. License: CC-BY-3.0 ActivHealth Phase1 Round2 Final_2-8-08.doc 220 KB All Platforms
 At-Risk Sedentary Adults Source Code, including website and database script information. Zip file. License: LGPL ActivHealth_SRC.zip 1.2 MB Windows
 At-Risk Sedentary Adults PowerPoint presentation on ActivHealth at AMIA Spring Congress 2007. PowerPoint presentation. License: CC-BY-3.0 AMIA Spring Congress 2007.ppt 1.4 MB All Platforms
 At-Risk Sedentary Adults PowerPoint presentation on Personal Health Records at American Public Health Association. PowerPoint presentation. License: CC-BY-3.0 APHA 2007 Massoudi.ppt 760 KB All Platforms
 At-Risk Sedentary Adults Literature Citations related to Behavior Change Mediators. Word document. License: None Behavior Change Mediators.doc 32 KB All Platforms
 At-Risk Sedentary Adults PowerPoint presentation on Personal Health Record Applications for Prevention at the National Conference on Chronic Disease Prevention and Control 2009. PowerPoint presentation. License: CC-BY-3.0 Chronic Disease Massoudi.ppt 2.5 MB All Platforms
 At-Risk Sedentary Adults PowerPoint presentation titled "What Consumers Want in Personal Health Records: Findings from Project HealthDesign" (2007). PowerPoint presentation. License: CC-BY-3.0 Consumer PHR Presentation_final.ppt 600 KB All Platforms
 At-Risk Sedentary Adults Design Documentation and Core Component Testing Report, including a detailed description of the ActivHealth application. Word document. License: CC-BY-3.0 CoreComponentReport final.doc 100 KB All Platforms
 At-Risk Sedentary Adults Analysis Phase Report of current conditions, including workflow, analysis envisioned future, etc. Word document. License: CC-BY-3.0 PHD Analysis Phase report.doc 75 KB All Platforms
 At-Risk Sedentary Adults Design Phase Report, including Assessment of User Needs, Implications, Design Outline, and User Interface and Architecture. Word document. License: CC-BY-3.0 RTI_PHD Design Phase report.doc 640 KB All Platforms
 At-Risk Sedentary Adults PowerPoint presentation on ActivHealth Summer at the Institute for Nursing Informatics. 2008 . PowerPoint presentation. License: CC-BY-3.0 SINI Presentation_final.ppt 880 KB All Platforms
 At-Risk Sedentary Adults Technology Scan of Uses for and Possible Role of Technology in Physical Activity. Word document. License: CC-BY-3.0 Technology Scan Draft (June 07) Final edits.doc 960 KB All Platforms
         

Stanford University School of Medicine - Living Profiles

FLASH programming for mood meter text reinterpretation. zip file. License: LGPL mood meter FLASH.zip
1.1 MB All Platforms
Living Profiles Project description, including Statement of User Needs, User Interface Sketches, and Prototype Architecture. PDF file. License: CC-BY-3.0 ArtCenter_DesignReport.pdf 1.5 MB All Platforms
Living Profiles Source code for quality of life timeline in HTML. LPHTML.zip file. License: LGPL LPHTMLFiles.zip 4.89 MB All Platforms
Living Profiles Video scenario, depicting the concept prototype with modules such as mood meter, reminder device, and teleport medicine. video mp4 file. License: CC-BY-3.0 RWJscenarioWithCC.mp4 42.1 MB All Platforms
Living Profiles Source code back end and Common Platform integration files. zip. License: LGPL sourcecode backend commonplatform integration.zip 385 KB All Platforms
         
TRUE Research Foundation - Diabetes Self-Management Link to add a set of example Google Gadgets to user's current iGoogle page HTML document. No license AddGoogle GadgetsTab.html
2.3 KB All Platforms
Diabetes Self-Management Complete set of project design and planning documents in a variety of formats, including html, video, Excel, txt files. zip file. License CC-BY-3.0 Design Documents and Content.zip 6.5 MB All Platforms
Diabetes Self-Management List of early static Google Gadget files, to record activities of daily living. Mostly in html format. Zip file. License: LGLP Early Static Google Gadgets.zip 2 MB All Platforms
Diabetes Self-Management Design Documentation, including Satement of User Needs/Assessment Phase Design Challenge, Design/Content Outline, User Interaction and Experience, User Interface Sketches, Prototype Architecture, and User Evaluation of Prototype. Word document. License: CC-BY-3.0 Phase I Progress Report ver FINAL.doc 3.7 MB All Platforms
 Diabetes Self-Management Prototype code for using the Common Platform, mostly in in Java script. zip file. License: LGPL (some files also covered under GNU license) Project HealthDesign CommonPlatform Version.zip 27 MB All Platforms
Diabetes Self-Management Final Prototype Code. Zip file License: LGPL Project HealthDesign EclipseFinal Prototype.zip 20 MB All Platforms
Diabetes Self-Management Directory of code and code documentation files. Txt file. License: LGPL Readme.txt 2 KB All Platforms
Diabetes Self-Management Prototype Database Creation Script - necessary for using Common Platform and for the final version of prototype. sql file. License: LGPL RWJF PHD Database Creation.sql 2 MB All Platforms
Diabetes Self-Management Developer instructions for setting up code in Eclipse. Word doc. License: LGPL Technical Information - Developer Instructions.doc 68 KB All Platforms
Diabetes Self-Management Project Demonstration Video - 8 minute movie - walkthrough of iGoogle and prototype usage. Quicktime video format and readme txt file. Zip file. License: CC-BY-3.0 TRUE Demo Video.zip 11.3 MB All Platforms
         
University of California, San Francisco - Customized Care Plan Source code and documentation for the project in PostgreSQL. zip file. License: BSD
64542GPsoftware2 postgresql-8.1.17.zip 17 MB Linux
Customized Care Plan Presentation from 2007 on the Care Plan Demo. PowerPoint File. License: CC-BY-3.0 Care Plan Demo v10.ppt 1.2 MB All Platforms
Customized Care Plan PowerPoint Presentation summary of the Project, including the need, design, roadmap, and underlying architecture. PowerPoint presentation. License: CC-BY-3.0 CHCF_RWJ final_2006-23-07.ppt 1.8 MB All Platforms
Customized Care Plan This file opens the LDAP (Lightweight Directory Access Protocol) browser, accessing the source code files. tgz file. License: OpenLDAP
 openldap stable 20080813.tgz 4.7 MB Linux
Customized Care Plan Power Point summary of the project, June, 2008. PDF file. License: CC-BY-3.0 UCSF CCP in DC - FINAL.pdf 1.7 MB All Platforms
Customized Care Plan Project Planning documents, including focus group interviews, planning reports, user guide for prototype. Mostly in PDF format. zip file. License: CC-BY-3.0
UCSF Deliverables no software.zip 1.7 MB All Platforms
Customized Care Plan Design Document, including a Statement of User Needs, Implications, User Interface Sketches, and Prototype Architecture. Word document. License: CC-BY-3.0 UCSF-Design-20070510.doc 850 KB All Platforms
         
University of Colorado at Denver and Health Sciences Center - Transitions of Care Paper entitled "Challenges in Evaluating Three Assistive Health Applications," CHI 2009 Workshop: Evaluating New Interactions in Healthcare: Challenges and Approaches." PDF file. License: CC-BY-3.0 Siek-Position Paper-Final.pdf 140 KB All Platforms
Transitions of Care Design proposal, including Statement of User Needs, Design Outline, and Prototype Architecture. Word document. License: CC-BY-3.0 ColoPHD_WK3 DesignProposal.doc 5 MB All Platforms
Transitions of Care PDF version of Power Point summary of Colorado Care Tablet, June, 2008. PDF file. License: CC-BY-3.0 CCT_Annotated Scenario_PUBLIC.pdf   5.4 MB All Platforms
Transitions of Care Poster entitled, "Colorado Care Tablet: Designing a Personal Health Record for Older Adults" presented Jane Mat the First Colorado Celebration Of Women In Computing in Boulder, CO USA during April, 2008. PDF file. License: CC-BY-3.0 CCWIC-FinalPoster.pdf 1.6 MB All Platforms
Transitions of Care Poster proposal text entitled, "Colorado Care Tablet: Designing a Personal Health Record for Older Adults" accepted to the First Colorado Celebration Of Women In Computing in Boulder, CO USA on April, 2008. PDF file. CC-BY-3.0 ccwic_CoCareTablet.pdf 104 KB All Platforms
Transitions of Care 1) The source code for the Colorado Care Tablet components developed by the Colorado Team
2) The source code for the components developed by Bent, Inc.
3) The database schemas for data specific to the Colorado Care Tablet mostly sql and php files. Zip file. License: LGPL
CCT_Source_Code.zip 1.1 MB All Platforms
Transitions of Care Document describing the overview of the project, data source model, and a description of all the files included in the source code file. Word document. License: LGPL. Software Documentation-V1.0.doc 112 KB All Platforms
         
University of Massachusetts Medical School - Management of Chronic Pain Storyboard/algorithms of the Electronic Pain and Activity Diary application. Mostly gif images. Zip file. License: LGPL EPAD Quiz Algorithms.zip 410 KB All Platforms
Management of Chronic Pain Narrated presentation featuring the target audience of the EPAD EPAD-Personas.wmv 19 MB All Platforms
Management of Chronic Pain Power Point summary of the Electronic Pain and activity Diary applicaton, June, 2008. PDF file. License: CC-BY-3.0 PHD Showcase in DC (June 2008).pdf 1 MB All Platforms
         
University of Rochester - Personal Health Management Source code intended to be illustrative of the design and implementation of an intelligent agent like the Personal Health Management Assistant. .tgz file. License: LGPL rochester-phd phma-31032009.tgz 509 KB MAC OSX
Personal Health Management Project summary, including Design Outline and Prototype Architecture. Word document. License: CC-BY-3.0 Rochester PHD UCD-Design.doc 260 KB All Platforms
         
University of Washington - Medication Management Document provides basic information about the design and components of the "Medication Management Between Office Visit" tool. Word document. Licensed by the University of Washington. GPsoftware.doc 1 MB All Platforms
Medication Management Listing of papers and presentations about the "Medication Management Between Office Visits" project, by the University of Washington team. Word Document.
BibliographyFinal.doc 66 KB All Platforms
Medication Management Congressional Diabetes Caucus monthly newsletter, December, 2008. Word document. Mentioned University of Washington's tool. GP Report.doc 143 KB All Platforms
Medication Management Presentation slides handout during the PHD June Showcase in D.C, giving project status in June, 2008. PDF File ShowcaseSlides.pdf 300 KB All Platforms
Medication Management Designing mobile dietary management support technologies for people with diabetes. "Journal of Telemedicine and Telecare." Volume 14, Number 7, 2008  PDF file. Licensed by U Washington UWashArticle.pdf 490 KB All Platforms
         
Vanderbilt University Medical Center - My Medi Health Source Code for the Medi-health application. Develop in PHP for web browser and IPhone interfaces.  Zip file. License: LGPL.
mediSourceCode.zip 66 KB All Platforms
My Medi Health Provides a short lesson on the login procedures and user help screens. Word document. License: CC-BY-3.0 Welcome Tutorial.doc 320 KB All Platforms
My Medi Health Descriptions of the photos used in the application - i.e. medication identification, for example. Word document. License: CC-BY-3.0 Photo Labeling Defined.doc 11 MB All Platforms
My Medi Health This survey provided feedback from users on the design of the My_Medi-Health application and tool. Word document. License: CC-BY-3.0 elab summary of results.doc 33 KB All Platforms
My Medi Health Design Phase Report, including Design Outline, User Needs/Assessment, User Interface Sketches, and Prototype Architecture. Word document. License: CC-BY-3.0 Vanderbilt_Design Phase Summary 515-1.doc 2.3 MB All Platforms
My Medi Health Link to Vanderbilt University My-Medi-Health project's website, with access to software demonstration. Internet link. License: Copyrighted Vanderbilt My Medi Health 1 KB All Platforms

 
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