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Grantee Home
Page Links:
Personal Health Management Assistant
University of RochesterPersonal Health Application for Diabetes Self-Management
TRUE Research FoundationChronic Disease Medication Management Between Office Visits
University of WashingtonMy-Medi-Health: A Vision for a Child-focused Personal Medication Management System
Vanderbilt University Medical CenterSupporting Patient and Provider Management of Chronic Pain with PDA Applications Linked to Personal Health Records
University of Massachusetts Medical SchoolA PHR System for At-Risk Sedentary Adults
RTI, InternationalLiving Profiles: Transmedia Personal Health Record Systems for Young Adults
Stanford University School of MedicineAssisting Older Adults with Transitions of Care
University of Colorado at Denver and Health Sciences CenterA Customized Care Plan For Breast Cancer Patients
University of California, San Francisco
Round 1 Work
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Round 1 Grantee Projects Project HealthDesign supports pioneers in health information technology to design next-generation personal health record (PHR) systems. A July 2006 call for proposals generated more than 165 applications from technology pioneers across the country.
From among the applicants, nine interdisciplinary teams were selected to participate in the 18 month project. Teams feature innovators that bring a wide variety of backgrounds and expertise to this challenge, including medical informatics, medicine and community health, computer science, media design, human systems engineering and psychology. Drawing on their talent, ingenuity and commitment, Project HealthDesign grantees have translated the Foundation’s mission into action.
To learn more about our grantees’ innovative projects, follow the link at the end of each project summary.
Grantee projects are:
Project Title and Description
Personal Health Management Assistant
Principal Investigator
George Ferguson, Ph.D.
Research Scientist
Department of Computer Science
University of Rochester, Rochester, NY
The University of Rochester team has designed a computerized “conversational assistant” to provide patients with heart disease with a “daily check-up.” Through a collaborative conversation, using speech and/or text chat, the system will help the patient share information relevant to their condition. The computer will then interpret how they are doing each day, personalize treatment recommendations based on established guidelines for heart failure patients, and collect longitudinal data to share with patients and their doctors. In building their prototype the team is able to evaluate their vision of a personal assistant that utilizes speech recognition, natural language understanding, conversational interaction, and knowledge-based task management. The team is also testing the ability to upload and download interview data through the web services interface to/from the PHD repository to document interview data and to inform subsequent interviews. The Rochester team also contributed to an initial evaluation of the adequacy of data structure for capturing observations of daily living (ODL).
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Project Title and Description
Personal Health Application for Diabetes Self-Management
Principal Investigator
Stephanie Fonda, Ph.D.
Senior Research Scientist
TRUE Research Foundation,
Washington, DC
TRUE Research Foundation and the Diabetes Institute at Walter Reed Army Medical Center (formerly Joslin Diabetes Institute) has designed a personal health application (PHA) to assist with the main components of diabetes self-management. The PHA will analyze, summarize, display, and make individualized recommendations on: nutrition/dietary data; daily physical activity data; the balance between nutrition and physical activity; prescribed medications; continuous blood glucose data; and self-reported emotional state. The PHA will also enable consumers to conduct “what if” analyses, which will predict the results of choices they might be considering (such the metabolic effects of particular meals). To accomplish these functions, the TRUE team developed an analysis and recommendations rules-engine that consumers will interface with via gadgets within iGoogle. Unlike other PHD teams that are developing PHA devices, TRUE’s rules engines may be embedded in many platforms. For this effort, the team makes use of the PHD data model and services for accessing (identity/security) and storing observations of daily living, certain elements of calendaring, and identity management. In their prototype testing, the team is examining how the PHD data model and services work with presenting data via gadgets within iGoogle. Specifically, their testing is concerned with issues such as whether the flow of data between source and gadgets is easy and reliable, whether calculations using data from the PHD data model are easy to perform and accurate, whether it is easy and accurate to convert data from the PHD data model into the gadget’s graphical interfaces, and whether the large volume of health data that this PHA will require will be accessible at all times.
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Project Title and Description
Chronic Disease Medication Management Between Office Visits
Principal Investigator
James Ralston, MD, MPH
Assistant Investigator
The Center for Health Studies, Group Health Cooperative
University of Washington
Seattle, WA
To shift the organization of healthcare towards patients’ needs, the team from the University of Washington has designed a PHR system that allows people with diabetes to record their blood glucose levels, blood pressure, food intake and exercise levels and quickly upload these readings wirelessly over a cell phone to their health care provider. Providers will review the information and sync it with the patient’s electronic medical record, providing feedback and counsel as needed. In testing the concept of a health record shared between patients and healthcare providers, the team is developing and testing a web-based application with extension onto a cell phone. An integration ware-house serves as data repository and reporting engine. The team has partnered with colleagues at the Norwegian Centre for Telemedicine (NST) in Tromso, Norway and with Sujansky & Associates to test interoperability of the common platform for mobile phone self-monitoring and user feedback of blood glucose levels. The collaborators are demonstrating the utility of the common platform for capturing and sharing person-level data.
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Project Title and Description
My-Medi-Health: A Vision for a Child-focused Personal Medication Management System
Principal Investigator
Kevin Johnson, M.D., M.S.
Associate Professor Department of Biomedical Informatics
Vanderbilt University Medical Center
Nashville, TN
The team at Vanderbilt University is developing a Personal Health Application (PHA) for children with cystic fibrosis and their caretakers – both at home and in schools – to track medications, alert parents when doses have been taken, manage refills, and more. Team members are developing a medication management PHA which can wear a variety of age-appropriate “skins” to work with the PHR. The device reminds kids to take medications at established intervals and can notify parents, school personnel and others if there is no response to a reminder. The team is testing their application – a device-independent interface for child-centered medication management that enables 2-way communication between their PHA, the PHR and other recipients by conducting pilot tests – with kids to obtain information on acceptability of the concept and the skins. The team also constructs and tests messaging and social filtering applets. Working with Tolven Inc., the Vanderbilt and Colorado teams are building a shared medication list and test it in different applications. Included in the working model of a common platform for medication management are the medication list, scheduling and documentation functions; the working model will link to reminder and alert functions. The teams are contracting with Thomson Healthcare for standardized patient medication information.
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Project Title and Description
Supporting Patient and Provider Management of Chronic Pain with PDA Applications Linked to Personal Health Records
Principal Investigator
Roger Luckmann, M.D., M.P.H
Associate Professor Department of Family Medicine and Community Health
University of Massachusetts Medical School
Worcester, MA
The University of Massachusetts Medical School team has designed a personal health application (PHA) to help patients document their daily pain experiences and physical activities. The application, an electronic diary, supports collection of self-reported pain and activity data on a handheld device, and eventually will provide both patients and their health care providers with a menu of options for analyzing and displaying this data. A touch screen device facilitates rapid completion of diary entries throughout the day. Response options to diary queries are customized to include only responses relevant to an individual user. The team has engaged target patients through focus groups to obtain input on content, function, UI design and hardware preferences. They are field testing a working prototype to assess ease-of-use and feasibility of data collection every 2 hours throughout the day. The team will also test the adequacy of the Common Platform specification of observations of daily living by transferring pain and activity data from the mobile device to the Common Platform database. They are also test the effectiveness of Common Platform utilities for accessing and sharing data with other patients and providers. The team is also evaluating the feasibility of using existing web services for accessing, analyzing and displaying pain and activity data in the Common Platform database.
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Project Title and Description
A PHR System for At-Risk Sedentary Adults
Principal Investigator
Barbara Leah Massoudi, Ph.D., M.P.H.
Senior Research Health Scientist
RTI, International
Atlanta, GA
Research Triangle Institute International is working with the Cooper Institute to develop a PHR tool to help sedentary adults become more physically active. The team has focused on physical activity through behavioral change, using a networking model that allows a link between patients and health care providers. Through a Web portal, sensor devices for patients can input personalized information about their physical activity level and lifestyle, generating a customized plan that increases their activity levels and fits into their daily routine. Daily activities may include taking the stairs rather than the elevator or parking a bit further from the office, for example. To test their innovative vision the team looks at biosensors (pedometer or accelerometer) for acceptability and simulates connection with existing social networks. The team sends and retrieves observations of daily living (activity, mood and weight) into their prototype through a web user interface, uploading device data through a USB port. Devices used in the program include a pedometer and an accelerometer (Kenz Lifecorder Plus).
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Project Title and Description
Living Profiles: Transmedia Personal Health Record Systems for Young Adults
Principal Investigator
Christy Sandborg, MD
Professor and Chief, Pediatric Rheumatology
Chief of Staff
Lucile Salter Packard Children’s Hospital
Stanford University School of Medicine
Stanford, CA
Principal Investigator
Lisa Nugent
Creative Director of Comprehensive Care
Global Strategy Design Office
Johnson & Johnson
New York, NY
Stanford University worked with the Art Center College of Design to develop a Personal Health Application (PHA) to help adolescents with chronic illnesses transition from pediatric to the adult care system assume greater responsibility for their health and their personal health information. The project team is working on an aggregate set of tools that gathers and integrates discrete data. By tapping into exhibited teen behavior such as texting, emotional connectivity through music and their social network, the tools seamlessly incorporate into their everyday world, improving communication with their caregivers. In testing the team’s vision of integrating data streams into graphical presentation the team has prototyped the physician teen exchange, providing feedback to the teen about the relationship between their behavior and state of health. They are building a customizable user interface consistent with PHD specifications for observations of daily living and calendaring with data flows including mood, medication reminders and visual representations.
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Project Title and Description
Assisting Older Adults with Transitions of Care
Principal Investigator
Stephen Eisenhard Ross, M.D.
Associate Professor
Division of General Internal Medicine
University of Colorado at Denver and Health Sciences Center
Aurora, CO
The team at the University of Colorado at Denver and Health Sciences Center is developing a portable touch-screen computer that older patients or their caregivers can receive upon hospital discharge. The tablet-sized PC will help patients track and organize medications, allowing them to coordinate their medication lists with their doctors. Additional applications will assist in scheduling prescriptions, ordering refills, preparing for visits and more. The team seeks to push the boundaries in ambient computing by older adults and, using embedded information (barcodes) in generating medication lists. They are also working to establish a semantic link between the medication list and an authoritative source of information such as Medline Plus. The team will prototype the application through rapid iteration testing and evaluation (RITE) methods, using tools such as storyboarding, paper testing of key features such as the tablet and scanner, and medication reconciliation and scheduling. Working with Bent LLC., the Colorado and Vanderbilt teams are building a shared medication list and testing it in different applications. Included in the working model of a common platform for medication management are the medication list, scheduling, documentation, reminder and alert functions. They are contracting with Thomson Healthcare for standardized patient medication information.
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