Current Projects

Five grantee teams are working to demonstrate how to improve the health and well-being of people with two or more chronic diseases by helping them capture, understand, interpret and act on information gathered from their observations of daily living (ODLs).  During the two-year initiative, teams will work with clinical partners and patients to:

• Identify, capture and store several types of ODLs for their target patient population;
• Analyze and interpret ODL data to extract clinically useful information;
• Use this information to provide feedback to patients so they can better manage their conditions and improve their health;
• Enable patients to share this information with members of their clinical care team in a way that can easily integrate into their clinical work flow; and
• Identify and explain opportunities and challenges associated with this overall approach to policymakers and clinical leaders.
   

Projects

Embedded Assessment of Elder Activities for Augmenting PHRs
Carnegie Mellon University is developing and evaluating new technology that monitors the routine of older individuals who have arthritis and are at risk for cognitive decline, providing data for long-term functional assessment and treatment.

BreathEasy: A PHR for Adults with Asthma & Depression or Anxiety
RTI International and Virginia Commonwealth University are designing an application for patients with asthma and depression to provide a clearer picture of their health in everyday life for treatment and self-monitoring.

iN Touch: ODLs Via Mobile Platforms for Youth with Obesity & Depression
San Francisco State University is examining the potential of collecting ODLs via iPods for low-income teens that are simultaneously managing obesity and depression.

Crohnology.MD
The University of California, Berkeley in partnership with The Healthy Communities Foundation and the University of California, San Francisco will help young adults who suffer from Crohn’s disease create visual narratives of their condition and treatment to provide concrete feedback to providers about how they feel from day to day.

FitBaby: Using ODLs among High Risk Infants & their Caregivers
University of California, Irvine and Charles Drew University are collecting information from high risk infants and their primary caregivers to allow them to more easily interface with their health care providers to improve care and communication.