Crohnology.MD
University of California, Berkeley
There are over 600,000 people in the US today living with Crohn’s disease, a chronic and progressive disorder of the digestive system. The disease is most prevalent in young adults aged 18 – 35 and can not only be complicated and expensive to treat but also has significant social and emotional implications. The University of California, Berkeley in partnership with The Healthy Communities Foundation and the University of California, San Francisco will help young adults who suffer from this disease to create visually aided narratives of their condition and response to treatment. Using smartphone technology and bio-measures, the project will enable patients to track ODLs such as digestive symptoms and weight loss, alongside indications of anemia, depression and fatigue. The key objective of this project is to help patients create and communicate an effective ‘patient narrative’ that can be used to increase the quality of the patient's life and health care over time.
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What the Crohnology.MD team is saying...
"To lead a full life with a chronic illness requires adaptation, organization and solid communication within a supportive community. Every aspect of this work is focused on making patient communications of a complex health condition easier, by weaving together innovative technologies that enhance and extend the patient voice as the first word in coordinated care."
Nikolai Kirienko '11, Project Director
University of California, Berkeley
“Our goal is to help patients capture vital information that is often invisible to the professional care team. By setting the stage for improved patient-provider collaboration in clinic, we hope to see improved outcomes beyond.”
Deryk Van Brunt, Dr.PH., Co-Principal Investigator
Healthy Communities Foundation
