|NOTE: As of June 14, 2013, the Project HealthDesign website is now an archive and will not be updated regularly. Please feel free to use the site to learn about our work exploring the power and potential of personal health records. Direct any inquiries to firstname.lastname@example.org.|
More than 600,000 people in the U.S. live with Crohn’s disease, a chronic and progressive disorder of the digestive system. The disease is most prevalent in young adults ages 18–35 and can be complicated and expensive to treat. Significant social and emotional implications may also result from the disease. The Chronology.MD team created two mobile applications to help young adults who have Crohn’s disease create visually aided narratives of their conditions and responses to treatment. Using iPads and other mobile devices, the project enabled patients to self-track ODLs such as pain and energy levels alongside clinical symptoms or measurements, such as B12 levels. Chronology.MD allowed patients to effectively communicate patient narratives that can help increase the quality of the patient’s life and health.
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"Our goal is to help patients capture vital information that is often invisible to the professional care team. By setting the stage for improved patient-provider collaboration in clinic, we hope to see improved outcomes beyond.”
Deryk Van Brunt, Dr.P.H., Co-Principal Investigator
Healthy Communities Foundation
"To lead a full life with a chronic illness requires adaptation, organization and solid communication within a supportive community. Every aspect of this work is focused on making patient communications of a complex health condition easier by weaving together innovative technologies that enhance and extend the patient voice as the first word in coordinated care."
Nikolai Kirienko, Co-Project Director
University of California, Berkeley