Ethical, Legal and Social Issues Group Resources
Understanding the ethical, legal and social implications of health information technology and data sharing associated with the next generation of personal health records and their applications, is a key objective guiding the efforts of Project HealthDesign. The ELSI group served as consultants to our first nine projects, from 2006-08.
ELSI Consultancy: University of Miami Ethics Programs
The ELSI team was led by Kenneth W. Goodman, Ph.D., and included Reid Cushman, Ph.D.; Michael Froomkin, J.D.; Anita Cava, J.D.; and Patricia Abril, J.D.
Documents
The New Health Information Architecture: Coping with the Privacy Implications of the Personal Health Records Revolution
PHRs and Privacy Regulation
ELSI Guide to Licensing Project HealthDesign Work Product
Forced Sharing of Patient-Controlled Health Records
Primer: Authentication of Identity
Project HealthDesign is a national program of the Robert Wood Johnson Foundation's Pioneer Portfolio